Methylmalonic Acidemia

Common Symptoms

Poor Feeding

Loss of Appetite

Vomiting

Hypotonia or Weak Muscle Tone

Lethargy or Lack of Energy

Feelings of confusion

Unable to think Clearly

Severe Symptoms

Coma

Intellectual and motor disability

Poor growth

Kidney disease

kidney failure

Seizures

Diagnosis

Exams and tests

Cause

Mutations in MMUT, MMAA, MMAB, MMADHC, and MCEE genes

MMUT gene provides the instructions that makes an enzyme which is very important in the breakdown of many protein building blocks

MMAA gene provides the instructions for making a protein the is involved in making a compound. The compound is vital for the regular function of another enzyme that breaks down specific proteins, fats, and cholesterol

MMAB gene also provides instructions for making an enzyme that is involved in an important compound

MMADHC gene provides the instructions for making a protein that converts vitamin B12 into two possible molecules. These molecules are nesscary for the regular function of an enzyme

MCEE gene provides instructions for an enzyme that converts an important molecule into another

Helpful Links

Protein Content of Foods

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Traveling on a Low Protein Diet

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Traveling Tips

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Metabolic Diet App

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Current Research

Statistics

1 in 20 000 babies are born with Methylmalonic Acidemia each year in Canada

When two carriers of an autosomal recessive condition have children, each child has:

25% or a 1 in 4 chance to have the disorder

50% or a 1 in 2 chance to be an unaffected carrier like each parentopic

25% (1 in 4) chance to be unaffected and not be a carrier.

60 percent of methylmalonic acidemia cases are caused by mutations in the MMUT gene

History

in 1967 MMA was first characterized by Oberholzer et al

Ther4e is not very much historical information concerning this genetic disorder.

Ammonia Test

Blood Gases

Complete Blood Count

CT Scan

Electrolyte Levels

MRI of the Brain

Methylmalonic acid blood test

Plasma amino acid test

Genetic Testing

Methylmalonic Acidemia (MMA)

At the Center for Rare Disease Therapy, every child diagnosed with a rare disease receives an individualized treatment plan and family-centered care

Hear from Dr. Tal Zaks, Moderna’s Chief Medical Officer and Lin Guey, Senior Director, Rare Diseases explain what mRNA-3704 is and how it may help patients with MMA.

What is a mutation

A mutation is a alteration or change in the structure of DNA. This results in a variant form that can be transmitted to other generations. Mutations can affect a single building block of DNA to a large section of genes or chromosomes

Diagnostic Criteria

Clinical Trials

Newborn Screening

More information on genetic testing

Genetic testing is a voluntary medical test that can be done to identify abnormalities in chromosomes, genes, or proteins

Diet

A diet is very important for those with Methylmalonic Acidemia. A strict low protein diet is vital for their all being

Information on Nutrition

Canada's Food guide

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Medication

Treatment and Prevention

There is not a specific treatment or cure for Methylmalonic Acidemia. The treatment for this disorder simply focuses on minimizing the symptoms.

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Vitamin B12

A pill that is avalive at most drug stores. This medication is only useful for those who still have some enzymes that function properly.

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Carnitine

This medication is available in liquid or pill form.Those with MMA often lack carnitine. Carntinine is important to energy production

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Flagyl/Metronidazole

This medication is only available by prescription. It is in pill form and decreases the amount of acid produced in the intestines. This will overall lower the level of acid in the body.

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Surgery

A more extreme option for treatment is a kidney or liver transplant

What is Methylmalonic Acidemia?

Other Names: MMA; Acidemia, methylmalonic

Methylmalonic acidemia is an inherited genetic disorder in which the body can't properly process certain types of proteins and fats

Food will only be broken down into the acid stage.

The acid will begin to build up in the blood, fluid around the brain, spinal cord, and urine.

Support

A nonprofit organization that provides information, support, events, connections with other parents, a discussion board, and nutrition and recipe ideas.

A volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders.

An online tool that families, who are interested in sharing their health and genetic information, can use to connect with other families, clinicians, and researchers.

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