Cystic Fibrosis
Family
Cystic Fibrosis is inherited
Physicians recommend getting tested if someone
in your family has Cystic Fibrosis
Children have to inherit one copy of the mutated gene
from both parents in order to be diagnosed with Cystic Fibrosis
Testing should be done before you and your partner want to have children if both parents have close relatives diagnosed with Cystic Fibrosis
Employment
It is possible for people diagnosed with Cystic Fibrosis to work
if they have continuous treatment on a regular basis
Refraining from very physically demanding jobs
Economy
Canada has spent over $244 million towards research, innovation and care
Media
Cystic Fibrosis is portrayed in a lot of films and popular
TV shows
Some roles that were played were not always realistic
Some of the movies and TV shows where Cystic Fibrosis
is portrayed is:
- Foreverland
- Red Band Society
- Bates Motel
There are a few books as well where a character has Cystic
Fibrosis:
- Ghosts
- No One Dies in the Garden of Syn
- Teeth
Individual
The symptoms of Cystic Fibrosis are more apparent over time
Children with Cystic Fibrosis are recommended to still attend school, though due to higher risk of infections, many children with CF have to skip school for spending time in the hospital, some parents choose to home school their children
Individuals with CF experience psychiatric problems such as
depression, and anxiety.
Every patient with CF must undergo daily treatments. Daily treatments increases life expectancy from 10 to 37.5 years.
Patients with CF must not smoke, must wash hands often, exercise often, drinking lots of fluids, doing chest physical therapy, taking vitamins regularly.
People living with CF can attend support group meetings with other patients living with Cf so they don't feel alone, these support groups are also available for caregivers of patients for Cf
The CFF which stands for the Cystic Fibrosis Foundation offers many resources for people diagnosed with CF. The CFF offers the following:
- recommendations for treatments and therapies
- insurance
- nutrition
- exercise
- travel
- school, education plans
- college scholarships
- financial aid
Health Care System
There are 42 Cystic Fibrosis clinics across Canada
Between 2017-2018 Canada has invested $5 million in research towards finding a cure for CF
Over 4,200 patients attend the 42 CF clinics across Canada