Community Outreach

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Minutes from first meeting:-- Bob Greenlee, director, Marshfield Clinic Community Engagement & Research: How narrowly are we defining community? Is it a geographic, cultural, or provider definition — or all of those?-- Chris Sorkness, sr. associate ICTR executive director with community program oversight: What about publicizing community-engaged research initiatives and best practices? What about highlighting successes for Type 2 pilot awards?-- Barb Bowers, T2 education associate director with CAP: There is confusion in finding things with the current wording on the web. People ask: how do I find research information that helps me in my community? How can I access this? Why should I think about research? We should target new research partners.-- Terry Cohn, community health connections: There needs to be a non-academic feeling and wording, so people in clinical settings in the state will connect.-- Sarah/Brenda (CCHE): the term underserved is not clear or inclusive (in the blue box). Something like Minority Health might be better.-- Another comment: perhaps "Community-based Investigators" might be a helpful entry in the FOR COMMUNITY MEMBERS box.Assignment:1) your choice for the one-line term that should be the title of that ICTR Web community blue box (currently "For Community Members")2) a list of ICTR services and resources for community partners and community-based investigators that you each provide, that we want audiences to easily find on our webSummary Responses:1) your choice for the one-line term that should be the title of that ICTR Web community blue box (currently "For Community Members")Community Engagement in Research’ and then have a second layer within this topic which allows people to choose between something like ‘For researchers’ and ‘For community partners’Community Resources and ServicesFor Community MembersCommunity Engagement in ResearchI don't have a preference for different term for the 'blue box' –CCHE/Sarah2) a list of ICTR services and resources for community partners and community-based investigators that you each provide, that we want audiences to easily find on our web• Defined patient populations for type 2 translational research• Resources to facilitate engaging communities (note: defined broadly) in researchWe first needs to really establish the purpose of the website, then determine how the contents should be arranged.• It would be good to include an introduction about the importance of community-academic research partnerships to finding solutions to community health problems—with an explanation of the crucial role community partners play in the process.• The content should be determined by the goal of the web space. If the goal is to find a place to put ICTR products, everybody at the 1/23/13 meeting needs to know that. • If the goal is to support community partners, then the following feedback might be helpful. It was collected in December 2012 from eleven past, present and prospective community partners.CCHE services in below list should be reflected as links. CAP primary "audience" is made up more of faculty than non-academic health center investigators. If a community member was interested in getting involved in research and heard about ICTR and in particular, ICTR T2 funding, I would primarily want them to have access to a consult form so that I personally could connect with them and act as liaison to whatever they might need within ICTR -- rather than have them search for something on their own on the site.Individual responses from above assignmentsBob Greenlee- MCRF1. With admitted naiveté as to the potential impact on the rest of the web site and orderly web development principles, I’d vote for calling the box ‘Community Engagement in Research’ and then have a second layer within this topic which allows people to choose between something like ‘For researchers’ and ‘For community partners’. Each one would lead to its own front page that clearly describes what we think that group is, and what sorts of things they are going to be able to link to, so that if they think made the wrong choice they can go to the other one.2. The 2 relevant ICTR services/resources (or at least the 2 main categories of such) that I’d plan to mention on the web for the MCRF CAP core would be:a. Defined patient populations for type 2 translational researchb. Resources to facilitate engaging communities (note: defined broadly) in research(But I should probably reserve the right to change my mind on how to organize this after I hear the good ideas that come from the other participants in the meeting.)Terry Cohn WRENOur suggestion for the box is "Community Resources and Services".I don’t mean to be trying to get out of our current assignment, or to be contrary, but do feel that in order to do a good job on navigation and content; one first needs to really establish the purpose of the website. I did some searching on the internet for a good list of reasons to have a website, and propose the following list from the business perspective for us to consider. I believe the model works for whatever “business”.• To establish an internet presence• It is an extension of your current advertising• To enhance your professional image/corporate identity• To offer company information and give the public a favourable impression• To educate customers and potential customers on products and services offered by you• To provide better customer service by providing information and feedback mechanisms• To increase public awareness of the your company’s name, brand or identity• To strengthen your position in the marketplace.• Create an internet footprint for you• To strengthen brand identification• To develop a list of qualified prospects and leads • It can sell products directly over the Internet taking credit cards and checks (e-commerce)• To make product or service information available to current customers• To make product or service information available to distributors• To bring in new clients or customers to our location via contact and map information• To compete in the global marketplace• To offer links to other relevant sites• To offer a virtual community, a place where users can interact with each other• To form a basis or platform for social media sharing• Keep clients and distributors informed on success stories/testimonials and industry related newshttp://www.abc.co.za/the-purpose-of-a-website/A website is static. One invites people to visit it from other social media sites such as twitter and facebook or blogs. One can have live facebook and twitter feeds on their website that are fed by social media widgets. That keeps one's website alive and provides notifications of upcoming events. So, if there already exists a document with the purpose of the website, it would be helpful to share it. If not, I would think one needs to be developed because those of us who met may have different desires, as identified in the list above when envisioning why one would visit the website.Sharon Schuumacher1. One-line term that should be the title of that community blue box (currently "For Community Members") “For Community Members”2. A list of ICTR services and resources for community partners and community-based investigators that you each provide, that we want audiences to easily find on our web. • It would be good to include an introduction about the importance of community-academic research partnerships to finding solutions to community health problems—with an explanation of the crucial role community partners play in the process.• The content should be determined by the goal of the web space. If the goal is to find a place to put ICTR products, everybody at the 1/23/13 meeting needs to know that. • If the goal is to support community partners, then the following feedback might be helpful. It was collected in December 2012 from eleven past, present and prospective community partners.Q: Which of the following information would be—or would have been—useful to you in your experience as a research partner and community health stakeholder? Please check all that apply. # of times checkedFunding and partnership opportunities. 5A way to communicate online with other communities and researchers. Comment: We have had other agencies have interest but due to distance and regional constraints unable to find ways to learn as much about others with similar actions. 4How to find research-tested health and prevention program models. 4Examples of existing partnerships around the state. 3Tips for developing competitive grant proposals. 3Best methods for evaluating community health programs. 3Provide tips for deciding whether to enter into a research partnership. 2A check list for how to negotiate a research partnership that benefits my community. 2Tips for partnering with university-based researchers. 2Other. Please describe. Contact information. 1Q: Please open the web page at this URL. (You'll have to paste the URL into your browser window.) Then, open the link for each topic on the page and read to decide whether the information would be useful to you as a community-based research partner. Then rate below how likely you would be to use the information in each topic. I would notuse this information Not sure I would likelyuse this information I would be extremely likely to use this informationFinding Collaborators 4 Health Equities / Underserved 2 1 1Statewide Networks 1 3 Working with Policy Makers 4 Learning Opportunities 1 2 CCHE/Sarah E’s commentsI don't have a preference for different term for the 'blue box' –Questions 2) needs to reflect/links to include our services.Service providedOrientation to CCHE Mission and CCHE/ICTR health equity research resourcesConducting a Mock Review for a Health Equity investigator/scholar submitting to NIHSecuring a CCHE Letter of Support for a research grant proposal applicationAssistance with developing a research Memorandum of Understanding with a community partnerCommunity engaged health equity research evaluation servicesRequest for co-sponsorship of an event (lectures, conference, etc.)Exploring partnership with a community based organization to conduct research collaborativelyExploring a partnership with a CBO to advance health equity research infrastructure/capacityArranging a community advisory board review of/feedback about my researchGuidance on a Wisconsin Partnership Program grant applicationReview of grant idea with community engaged health equity research elementsReview of health equity focused NIH research grant proposal in draft formReview/feedback on a health equity/community engaged research publications in developmentAdvising on successful recruitment strategies to engage members of underrepresented communitiesUtilizing a Research Ambassador for limited research study/support/coordinationAssisting with development of IRB protocol for community engaged health equity researchAssisting with responding to IRB Request for Modifications Andrea Dearlove – CAP1. For the blue box title, still: "Community Engagement in Research" or "Engaging Wisconsin's Communities in Research"; p.s., i love the UNC site: http://tracs.unc.edu/2. In my position within ICTR, my primary "audience" is made up more of faculty than non-academic health center investigators. If a community member was interested in getting involved in research and heard about ICTR and in particular, ICTR T2 funding, I would primarily want them to have access to a consult form so that I personally could connect with them and act as liaison to whatever they might need within ICTR -- rather than have them search for something on their own on the site.List of services for investigators -- these can be directed to either academic investigators or community members/stakeholders:Facilitating initial connectionsOngoing support for research collaborationProviding access to community/stakeholder advisory boards for research feedback (mostly for academic investigators)Collaboration with a practice-based or community-based research networkBuilding skills/education offerings/workshopsGenerating research questions/discussing project ideasCareer mentoring (for academic investigators)Study designProject implementationData analysisRegulatory supportPreparing a grant./contract submissionPreparing a scientific manuscript/poster/oral presentationPromoting or distributing written materials on a specific topic with a community audiencePromoting or coordinating oral presentations or briefings on a specific topic with a community audienceProviding assistance on specific policy improvement activities and/or policy decisionsProviding assistance on specific program and practice improvement activitiesUNC home page:

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REC

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ICTR offers a wide array of educational, training and career development opportunities for post-doctoral fellows, junior faculty or students in the Schools of Medicine and Public Health, Nursing, Pharmacy, Veterinary Medicine and the College of Engineering, as well as other health science professionals who are interested in learning more about clinical and translational research. The overall aim of ICTR's educational offerings is to develop a diverse, multidisciplinary clinical and translational research workforce in order to accelerate the translation of research findings into evidence-based policies and practices that improve the health of all populations in the United State

Education & Training

Graduate & Certificate Programs

ICTR Graduate Programs in Clinical Investigation

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Add links to PDF versions of student and faculty handbooks

Overview of Clin. Investigation Program

MS in Clinical Investigation

Learning Objectives and Curriculum

Application Guidelines

Admissions Guidelines

PhD in Clinical Investigation (major)

PhD Minor in Clinical Investigation

GPCI Faculty Governance Committee

Faculty Mentors

ICTR Certificates in Clinical & Translational Research

Capstone Certificate in the Fundamentals of Clin. Research

Certificate Course Requirements and Descriptions

Certification Admission Requirements and Application Process

Type 2 Translational Research certificate

Certificate Course Requirements and Descriptions

Certification Admission Requirements and Application Process

Partner Programs

SMPH

School of Pharmacy

School of Nursing

College of Engineering

School of Vet Med

Pre- and Post-doc Funded Training

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Page includes overview of this areaEach section under this area includes application information

Pre-doc training

TL1 Program

TL1 Trainees

Summer research programs

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Undergrad Minority/Diversity program

Nursing, Pharmacy, Vet Medicine, Engineering (future)

Post-doc training

KL2 Scholars Program

Current Scholars

Past Scholars

Training activities

Events schedule (contained in master calendar)

Writing groups

Mock study sessions

TL1 Program

TL1 Trainees

AHANA Diversity program (CCHE)

Research Training Resources

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Includes resources for both clinical and translational...change to "Investigator Resources?"roll-over displays "Type 1/ Type 2 Clinical"Include the videos and bibliographical resources currently included on the CAP Education page:Qualitative Methods video Collaborative Conversations video Comm-based Participatory Research Methods video Type 2 trans. research bibliog. Qualitative research bibliog.Include both Madison and Marshfield offerings in each of these areasICTR Research Learning Series videos featured under each of the applicable topic areas (from both Madison & Marshfield)These areas include links to offerings from the Graduate School (vs. a separate link to Grad School training page)

Grant Writing

Study Design and Methodology

Teaching and Presentation Skills

Biostatistics for projects

Manuscript Writing

Project Management

Professionalism and Collaboration Skills

Bioethics and Regulations

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Bioethics and Application of Regulations to Research

Coordinator Training

Mid-state Technical College (Marshfield)

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Link to info on Associate Degree in Research Coordination

CITI

National Organizations for Coordinators

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Such as SOCRA

Regulatory Training

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Links to Training under For the Investigator-->Regulatory Resources

Mentor development program

Community Resources

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Explore Marshfield resources to include in this section

Links to health research/community partnerships information

Outreach @ Ebling Library

IME video library

Community-Campus Partnerships for Health (CCPH)

Transforming Campus Communittees through Public Engagement:The Critical Role of Boundary Spanners

The University of Wisconsin-Madison Speakers Bureau

Associations, etc.

Links to American Diabetes Association

Program development and evaluation

Cooperative Extention's Web Site on Program Development and Evaluation

Education and Training Resources for Community Research Partners

Grant writing resources

Wisconsin Partnership Fund web site

Fundamentals of Effective Grant Writing

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link to video presentation on IME library

CAP

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Data captain: Heather McManamyData source: Access database maintained by Heather8/31/12 - A new project-oriented database is currently being developed, based on existing Health Innovations Program database (with help from Patrick Ferguson at HIP)For Sept. 7 reporting, CAP will submit only HIP service data (March-July). HIP report contatins the greatest amount of service data from CAP.For Oct. report, CAP will submit only Type II pilot grant data (March-Sept)For Nov. report, CAP will submit data from all remaining areas, including HIP and Type II grant updates (March-Oct) CAP uses different grant type definitions - these will need to be reviewed and "mapped" to WebCAMP grant type categories when the data arrives (on spreadsheet)Sub-components of CAP will be included in the Core/Component name field - we will need to separate that text and add the sub-component description to the "Service details" text.

CHC

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Community Health Connections

WREN

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Wisconsin Research & Education Network

Sonderegger

Evidence Based Health Policy Project

SEIPS

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Systems Engineering Initiative for Patient Safety

LaFollette Institute

HIP

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Health Innovation Program (HIP)

Simulation Center

CAP Front Door

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I don't know what this is?

CAP Education

OCPD

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Office of Continuing Professional Development (OCPD)

CCHE

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Data captains: Sarah Esmond & Megan LarsonData source: CCHE spreadsheets, CCHE employeesReporting spreadsheet finalized:"Title" and "Affiliation" in Project Personnel will be retrieved from ICTR membership database.Services Provided are still being defined as of 8/23.Grant info will only be reported (available) for HELI scholars that have a continued service relationship with CCHE.

CRIS

OnCore

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They have an investigator knowledge base for OnCore. So this educational component for Oncore could/or not be added to the educational tools list.

Marshfield Clinic

WiNHR

CRU

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Clinical Research Unit

CAP

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Community-Academic Partnerships

Education

Community & Clinical Practice Research

Resources for Research Projects

Health Innovation Program

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http://www.hip.wisc.edu/

Office of Continuing Professional Development - Research Unit

Qualitative Research Resource

Simulation Center

Sonderegger Research Center

Systems Engineering Initiative for Patient Safety

Finding Research Partners

CAP Consults

Marshfield

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See Humberto V. column in last ICTR newsletter

Community Health Connections

Health Disparities Research

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Includes welcome and description for both community members and investigators/researchers

Collaborative Center for Health Equity

For minority community members

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Provide proper tags to this page so that it appears readily in search engines. (Same for all other pages, of course.)

For investigators

Center for Urban Population Health

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http://www.cuph.org/

United Community Centers

Great Lakes Inter-Tribal Council

Health Data Resources

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Links to applicable Marshfield Clinic sites

Marshfield Epidemiologic Study Area

Study of the Health of Wisconsin

PMRP - Personalized Medicine Research Project

Health Innovation Program

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http://www.hip.wisc.edu/

Practice-based Research Networks

WiNHR

WREN

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http://www.fammed.wisc.edu/research/wren

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Pharmacy Network

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under development

WON

Health Policy & Dissemination

Evidence-based Health Policy Project

La Follette Health Policy Assistantships

Main topic

Main topic