Cystic Fibrosis

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Cystic Fibrosis

Health Care System

Over 4,200 patients attend the 42 CF clinics across Canada

Between 2017-2018 Canada has invested $5 million in research towards finding a cure for CF

There are 42 Cystic Fibrosis clinics across Canada

Individual

The symptoms of Cystic Fibrosis are more apparent over time

Children with Cystic Fibrosis are recommended to still attend school, though due to higher risk of infections, many children with CF have to skip school for spending time in the hospital, some parents choose to home school their children

Individuals with CF experience psychiatric problems such as depression, and anxiety.

Every patient with CF must undergo daily treatments. Daily treatments increases life expectancy from 10 to 37.5 years.

Patients with CF must not smoke, must wash hands often, exercise often, drinking lots of fluids, doing chest physical therapy, taking vitamins regularly.

People living with CF can attend support group meetings with other patients living with Cf so they don't feel alone, these support groups are also available for caregivers of patients for Cf

The CFF which stands for the Cystic Fibrosis Foundation offers many resources for people diagnosed with CF. The CFF offers the following: - recommendations for treatments and therapies - insurance - nutrition - exercise - travel - school, education plans - college scholarships - financial aid

Media

Cystic Fibrosis is portrayed in a lot of films and popular TV shows

Some roles that were played were not always realistic

Some of the movies and TV shows where Cystic Fibrosis is portrayed is: - Foreverland - Red Band Society - Bates Motel There are a few books as well where a character has Cystic Fibrosis: - Ghosts - No One Dies in the Garden of Syn - Teeth

Economy

Canada has spent over $244 million towards research, innovation and care

Employment

It is possible for people diagnosed with Cystic Fibrosis to work if they have continuous treatment on a regular basis

Refraining from very physically demanding jobs

Family

Cystic Fibrosis is inherited

Physicians recommend getting tested if someone in your family has Cystic Fibrosis

Children have to inherit one copy of the mutated gene from both parents in order to be diagnosed with Cystic Fibrosis

Testing should be done before you and your partner want to have children if both parents have close relatives diagnosed with Cystic Fibrosis